My name is Brandon Danger Longtin and I was born with Bilateral Coronal Synostosis. That is where both of my coronal sutures fused before they are supposed to. This is my journey as seen through my mommys eyes.
i read your son's journey. I understand what you are going through as my daughter had surgery for craniosynostosis at Yale-New Haven Hospital on Feb 14, 1978. At the time it was a new procedure. My daugher lead a very active and happy childhood. She is now 32 years old. We are very greatful to her team of surgeons. Your son is in good hands with Dr. Elton and Dr. Schmeltzer.
3 comments:
Wow! I didn't think after seeing him the other day it could get worse. I guess they were right, it does get more swollen.
I hope he is feeling better and getting back to normal soon!
Forgot to say we are keeping you all in our prayers!
i read your son's journey. I understand what you are going through as my daughter had surgery for craniosynostosis at Yale-New Haven Hospital on Feb 14, 1978. At the time it was a new procedure. My daugher lead a very active and happy childhood. She is now 32 years old. We are very greatful to her team of surgeons. Your son is in good hands with Dr. Elton and Dr. Schmeltzer.
Wendy
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